Dear Dysautonomia,
I grew up thinking I understood chronic invisible illness.
After all…Mum was sick. Continue reading “Dear Dysautonomia”
Dear Dysautonomia
Through a child’s eyes…
I broke my ankle in early 2009. I wish I could say it was from something exciting, like a jet skiing accident. Continue reading “Through a child’s eyes…”
Dealing with dragons
If a doctor’s time is gold, then receptionists are the dragons that guard it. This makes phone calls to doctors’ offices tricky. Continue reading “Dealing with dragons”
Can we stop with the extremes?
Food is something that I’ve really always struggled with.
My Dad is Lebanese, and even though my Mum did the cooking when we were growing up, we ate a lot of multicultural food (yum!!).
Continue reading “Can we stop with the extremes?”
Which Doctor
I’ve been unwell for over a decade now. And still, every time I have an appointment with a doctor, there’s a little war inside of me. Continue reading “Which Doctor”
Martha Stewart, I am not.
Whenever I played “house” growing up, my imaginary home was neat and tidy. In my play-world the floors gleamed, there was no clutter on the table, and the fridge was full of healthy but tasty food. Continue reading “Martha Stewart, I am not.”
Dignity
What is dignity?
Our English word ‘dignity’ comes from the Latin ‘dignitāt-em’, which means… worthy.
Continue reading “Dignity”
What is Dysautonomia?
Dysautonomia is a condition where the autonomic nervous system (ANS) doesn’t work properly. But what is the autonomic nervous system? Continue reading “What is Dysautonomia?”
Dysautonomia: the umbrella
People often find it confusing when I use the words dysautonomia and POTS interchangeably in a conversation. They’re like, “Hang on, which one is it that you have?” I know that a lot of newly diagnosed patients struggle with this too, so I thought I’d make an infographic to explain. Continue reading “Dysautonomia: the umbrella”
What is this madness?
When a newly diagnosed friend was confused about the difference between Dysautonomia and its subtypes, I looked for an infographic to explain. I was astonished when I couldn’t find one – it seemed like a really obvious thing to have a visual representation of. So I whipped one up for her, and posted it on my blog, thinking maybe it would be helpful for others too.
Less than 24 hours later, that infographic post has OVER ONE THOUSAND VIEWS! Continue reading “What is this madness?”
Reflections Of A Bear 