The problem with your but (it’s not what you think!)

*deep breath*

It’s been over a month since my last blog post. I didn’t fall off the face of the earth; I just received some news that I needed time and space to process. I still haven’t finished processing, but I’ve reached a place where I’m more able to talk to people about it. Yet, despite reaching that place… I still haven’t blogged about it.

I realised that part of the reason for that was because I was afraid of all the big buts.


Continue reading “The problem with your but (it’s not what you think!)”

Out of the mouths of doctors

One morning, several years ago, Mr Happy went to put on his shoes, but got ‘stuck’ with excruciating back pain. He had to lay on the ground, cancel work, and call a friend to take him to the doctor. He was completely disabled. But when he painfully limped into our doctor’s office and explained his symptoms, the doctor just shrugged and said,
“This is normal now that you’re getting older. Take some Nurofen and you’ll be fine.”

Mr Happy was only 27 then – hardly ‘getting older’! So we went to our chiropractor for a second opinion. He ordered a scan, which showed a severely bulging disc that was pressing on the nerve.

At the time, Mr Happy was fit and healthy, and so had had little experience with the medical world. He was stunned that a doctor could be so dismissive, so uninterested in finding out what is wrong, and fixing it. After all, isn’t that the purpose of a doctor? Continue reading “Out of the mouths of doctors”

Relief. Grief. Repeat.

A lot of newly diagnosed patients have just joined a dysautonomia support group that I’m part of. Seeing their posts got me thinking about when I was first diagnosed, and the emotions that caused. When it comes to chronic illness diagnosis, everyone’s experience is different, and everyone processes their experiences differently. So I don’t want to tell anyone what they should be feeling, or how they should deal with it. I just want to share my personal experience, in the hope that others might find it helpful.

*          *          *

For me, being diagnosed with a chronic illness was an emotional time.

I was confused: What is this illness? How did I get it? WHY did I get it?

I was hopeful: Maybe now that they know what I have, they can treat it?

I was afraid: How will this illness affect my life? People aren’t going to understand…  All the dreams and plans I had – am I ever going to be able to do them?

There were so many different feelings all swirling around inside of me, fighting for recognition. But relief and grief were the two emotions that stood out. Continue reading “Relief. Grief. Repeat.”


A single dark cloud
Rolls across the sky
But swiftly it grows
Into a terrible storm

The dam quickly fills
Higher and higher
The water rises

Gentle ripples
Become giant waves
Pounding against the wall

The pressure builds
The barrier trembles
The wall begins to crack

A single damp tear
Rolls down her face
But swiftly it grows
Into a waterfall


xx S.



The Liebster Award


My recent post called Why do I blog? might fool you into thinking I’m an actual blogger. But, in reality, I’m only a newbie, still learning the ropes. I keep expecting someone to burst in at any moment and shout, “HEY! What are you doing?! You can’t be blogging! Who do you think you are? You’re not good enough!”

So I was both shocked and honoured when Living a Lung Life nominated me for The Liebster Award. Continue reading “The Liebster Award”